Dear New AFM Family,

We’re so sorry to hear that you have a need for this group, but glad you found us. Our private parents Facebook group has over 600 parents fighting for their kids, just. Use the search function on the page to look for posts that might be helpful or write a new post about your situation! Everyone is very supportive and there is an accumulation of knowledge.

We recognize that the early days of AFM are intense, emotional and busy. When you are ready, here are some resources and ways to participate in our community:

  1. Fill out this quick survey to provide AFMA with a little information about your child.

  2. Read this document (coming soon), full of information on the acute phase, rehab and life at home.

  3. Join the TMA. The Transverse Myelitis Association is a partner of AFMA and is actively researching the condition.

  4. Participate in the genetic study at Johns Hopkins - working to find a genetic link between our kids. It’s a super easy saliva sample. Email Priya Duggal at pduggal@jhu.edu to get started.

  5. Join the CAPTURE study at UTSW led by Dr. Greenberg. Dr. Greenberg is a leader in the AFM medical community (see below). Email patricia.plumb@utsouthwestern.edu to get started.

  6. Watch the below presentation by Dr. Greenberg at The Transverse Myelitis Association’s 2018 Regional Rare Neuro-immune disorder symposium to hear one of the very best explanations about AFM. It is a thorough discussion that is worth the time!

Benjamin Greenberg, MD, MHS, University of Texas Southwestern and Children's Medical Center.
2018 Regional Rare Neuro-Immune Disorder Symposium October 27, 2018 hosted by The Transverse Myelitis Association and Boston Children’s Center for Pain and The Brain